Two steps forward, one step back...
For those of you who know me, you know that I am not a crier. So when it happens it typically freaks people out.
The scenarios that tend to make me cry are typically anger or being so proud of someone or something that I want to burst. Yesterday was one of those days.
After much hoopla and excitement about our 3pm feeding, we only did about 20 something mls, which was a bit of a bummer, but still not as low as it had been in the past. However, when we got to 6pm, Dad and Axel rocked it. I felt like I was in a bar in college staring at someone and yelling, "CHUG! CHUG! CHUG!!!" Only the subject of this chant was only 8 days old. That being said, he kicked it into gear and CHABLAM! He inhaled not 40 mls, but 45mls at the 6pm feeding. Even more exciting is that he did it in only 20 minutes, which was record timing. I was so excited by this turn of events that tears poured out of my eyes as I yelled "YAY!!!" We then proceeded to tell any medical personnel that made eye contact with us about this huge accomplishment.
The scenarios that tend to make me cry are typically anger or being so proud of someone or something that I want to burst. Yesterday was one of those days.
After much hoopla and excitement about our 3pm feeding, we only did about 20 something mls, which was a bit of a bummer, but still not as low as it had been in the past. However, when we got to 6pm, Dad and Axel rocked it. I felt like I was in a bar in college staring at someone and yelling, "CHUG! CHUG! CHUG!!!" Only the subject of this chant was only 8 days old. That being said, he kicked it into gear and CHABLAM! He inhaled not 40 mls, but 45mls at the 6pm feeding. Even more exciting is that he did it in only 20 minutes, which was record timing. I was so excited by this turn of events that tears poured out of my eyes as I yelled "YAY!!!" We then proceeded to tell any medical personnel that made eye contact with us about this huge accomplishment.
The evidence.
The victor.
Clearly, that was the best high possible to leave the NICU with yesterday. It's amazing how much pride you can have in watching a little person chug a bottle and finish it.
This morning we got to the NICU and it turns out that he didn't quite continue with this chugging skill. He did one bottle that was 43mls, but another was only in the 20's. For those of you who like detail:
7.11:
6pm: 45ml
9pm: gavage (all through tube)
12am: 43ml
3am: 25ml
6am: gavage
9am: 35ml
12pm: 31ml
3pm: gavage
The doctors aren't thrilled about this progress so unfortunately they are taking a step back to help him. I think the doctor put it in a really good way: Imagine just starting Cross Fit and being forced to do it every three hours. This is what this is like for him.
So, we are moving to a new feeding model... alternating bottle feed with the gavage. Every 12 and 6, he'll get a bottle. Every 3 and 9, he'll have the gavage. Once he is consistently taking 40ml through this schedule on the bottle, they will move him back to his current schedule of bottle, bottle, gavage. Once he has that down, they will then move to all bottles. He has to be consistent with just the bottle for at least 48 hours before they will take the tube out and move on to his other exit criteria.
SO - a bummer, but it's all to benefit him and help him to grow stronger and better at this.
Cute pic to help you continue paying attention...
On a fun note... we have been playing fun music from the Rock - A - Bye Baby series - essentially they are lullabies based off of popular music. Anything from Lady Gaga and Madonna to Pearl Jam, Bob Marley, the Beatles, Depeche Mode.. the list is massive. But it occurred to us that the music is SUPER relaxing and probably isn't helping the cause to keep him awake during his feedings. So we've compiled a Feeding Playlist filled with POWER SONGS to motivate him, just as you would in spin class or during a run.
The list currently includes:
Eye of the Tiger - Survivor
Uprising - Muse
Bawitdaba - Kid Rock
Not Afraid - Eminem
Axel F
Go Go Gadget Flow - Lupe Fiasco
Iron Man - Black Sabbath
Whatcha Whatcha Want - Beastie Boys
Can't Stop - Red Hot Chili Peppers
Mama Said Knock You Out - LL Cool J
Enter Sandman - Metallica
Welcome to the Jungle - Guns N' Roses
Wanted Dead or Alive - Bon Jovi
Don't Stop Believing - Journey
Baba O'Riley - The Who
Slam - Onyx
Whip It - Devo
So my question to you, Axel's devoted readers... what is your power song? Help us build this list so we can give him the energy he needs to get this consistency down!!!
No Surrender -Springsteen
ReplyDeleteDone!
DeleteOh oh!!! Titanium! David guetta
ReplyDeleteAwesome call.
DeleteWe recommend AC/DC: Jail Break, For Those About to Rock, Have a Drink on Me, Shoot to Thrill, and Let There Be Rock!
ReplyDeleteSo get this. Spotify doesn't seem to have AC/DC. :( There are tribute bands but I can't find AC/DC!!! Any other recommendations?
DeleteWill Smith anything.... But I'm partial to Switch. I would totally chug my milk to it! You've got this. Love you!
ReplyDeleteFUN! Done. :)
DeleteI think you should have Ben sing to him... I can bring the Indian wood flute or my australian digiridoo and play along :)
ReplyDelete